The Warmth of The Sun

It is something that should not be underestimated. the Warmth of the Sun.

Before I came away on this trip, I was feeling tired. For tired read totally exhausted. My body felt as though it was giving up on me, failing me at almost every opportunity and although I believed that there was a light at the end of a tunnel, I just couldn’t feel it. But I had to keep believing in the fact that it was actually there.

Depression had taken quite a grip of me for a while, despite my attempts to “not give it any house room” and as simple as it sounds now, it has become clear in the past few weeks that what I needed a holiday. A real, relaxing, holiday with the sun on my skin and heat which warmed my bones from the outside in. Away from all of the things that had caused all the stress. A break from it all. Despite the trip to Barcelona last year, this has been my first downtime holiday in eight years. Since we got the house, that has been our go to place away from it all. Which was my off switch from work when I needed to get away. But due to the lack of work seems to have become another on the list of unfinished things which we have been unable to resolve. I love being there, it truly feels like home when we are there but it needs a lot of money we just don’t have spending on it to get it up to scratch and I know that it is weighing heavily on our minds that the climate causes us issues which even if we got the place tip top, we would still suffer in the winter there, thus requiring a warmer climate for at least part of the year.

This holiday has been wonderful. I have spent quality time with my friends and their family, which has been great. I have seen so much and felt the excitement of new experiences running through my veins. A renewed zest for life. I felt as though I have reset my system to deal with things that the future may hold and I feel much calmer now. I have also had some awful nightmares in the past month, but I have awoken from them knowing that they were just that, bad dreams and being able to let go of the details. The angst that has followed me around for so long, the looking over my shoulder spending waking moments and sleeping ones thinking about the antics and ravings of a disturbed neighbour had worn me down so much that I no longer felt safe in my home, or the life that was happening around me. As though every last bit of control that I had over my life and destiny had been removed. It is not the way that a life should be lived, little more than existing from one day to the next. It is not the life for me.

I don’t have it all worked out yet, clearly it is one step at a time. But I do feel better equipped mentally to deal with what is coming my way in the future. I have been trying to figure out my purpose as some of you have read for a while now, I still don’t have the answer, but I feel that I am now much more open to opportunity should it come my way and I may even be able to see it, if it presents itself instead of missing it by a mile.

I have missed my family a lot in the past month. I am reliant upon them for love and support and I am looking forward to seeing them again. I am looking forward to the intimacy of holding them close to me seeing their smiles in front of me, not just as a memory held dear.

I know that I need to find something for work which physically I am able to do. My physical capability has diminished so much in the past year that I do not know what I will be able to do, but there has to be something. I had hoped that a huge amount of sleep would mean that my energy levels would go up but honestly I can’t say that has happened. I am still incredibly tired. So maybe the Dr was right maybe CFS or Chronic Fatigue IS what has been happening to my body. I found out that I am not able to sleep at all if I miss my painkillers. I tried, but all of the pain that was there previously returned with a vengeance. So it hasn’t miraculously gone. I do not take lots of them but going without is foolhardy.

It was a huge relief to be told that the results of my MRI were clear and good, so there was no neurological reason for the seizures that I had last year, or the shaking which has at times taken me over. But what I have noticed as clear as day is that the warmth of the sun and being in this climate has stopped the tremendous pain that I have felt for months in my hands and feet. Although I still have it from time to time it is a lesser scale and less frequently. It took some getting used to the heat here and I don’t know how I would cope when it gets hotter but, this introduction to a warmer climate seems to have done me the power of good. It has also made me realise that if i can feel the benefit of this in just one month, then think of the effects that a move to a warmer climate would have on us as a family in the long term. Conversation with my friends here extolling the benefits of the warmth make me realise what I already knew from previous jaunts to the sun, that not only does it suit me, but I like it. Which is bizarre since it has rained a lot here in the last month. But it is generally warmer and you can’t feel that consuming damp that gets deep into your bones.

I don’t know that my partner would cope with the Australian heat particularly well, or that he would make a trip out here and it certainly wouldn’t be fair on our dog to make a long haul, but it has reaffirmed that we should attempt to get to warmer climes and Southern France or Italy still looks incredibly inviting and much more likely as a place where we could happily settle.

Could I make a living being a writer? I know that hat I keep asking this question but it’s because I don’t know the answer. I honestly don’t know, but I am not giving up on that idea. I have to find something. I have realised that I do need to find my career niche, but I may have to settle first with a job, just something that covers the bills. It depends on the location we find I guess, I only hope that health improves to enable that to happen.

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Rebuild

I wake from dreams I’d rather not see,

In places where I don’t want to be.

My hands are shaking, blood pumping fast.

Why must this feeling of betrayal last.

As I rise, with face engorged,

To gather my armour and my sword.

Feet placed firmly upon the ground.

But my body spinning round and round.

Ready at the moment to let battle commence,

If I had my time again would get off the fence.

Would I show the truth behind the lies,

The ones betraying, the hidden spies.

Who caused hurt and pain and such a mess,

And deeds which broke me, causing distress.

So as I stand with my feet on the floor,

Heading out towards the door.

Was I as strong as everyone thought,

When I left that place, hurt and distraught.

Still in a spin now years have passed.

Oh why oh why does this feeling last.

As though on my axis, my own planet.

Why haven’t I got over this yet?

I wake from this and start to think,

So many times I’ve been to the brink.

What thoughts or deeds send me there,

Haven’t I moved on, so why should I care.

The feeling as raw as if it were the day,

The rug from me was pulled away.

Years of my life, hard work was gone.

Did not know what I’d done wrong.

Punished for strength and loyalty,

Tying me down, not setting me free.

Wanting them one day to make amends,

And doing my best to still stay friends.

But friends are not what they’ve been to me,

By removing the plasters, the wounds they’d see.

Time has not healed the hurt they caused,

Left in their wake, the bodies they’ve gorged.

They say in business there are no friends,

So why time and thoughts I continue to defend.

Let me go, I’ve paid the fee

Wish I could continue to rebuild me.

The Daily Post – Transformation

Do you know what it is yet?

Well yes and no. As some of you may have been reading my posts for a while now already know. I haven’t been well for a while.
It’s why posts have been sporadic for the past couple of months at least. I aim to do a little better since for my own peace of mind I have to still be able to do something.

I suffer with Endometriosis, hypertension, depression and have over the past couple of years been through quite a lot. At times it has really got me down and I haven’t always known which way is up. 

I am trying. Trying to get through whatever this is but knowing your body and how it behaves is a two edged sword. I have had Endometriosis, a chronic condition since I was seventeen years old but back then I didn’t know. I waited and went through a living hell that only those with a chronic condition will understand for another 18 years before it was finally confirmed.
8 years ago, I had a hysterectomy and thought that finally my life could begin. I’d been given a new lease of life. I was cured! 
Well actually no, I wasn’t. Although my health improved significantly for a while, it is an incurable condition aggravated by stress and can present itself in and around other organs causing unimaginable pain.
Fast forward to a few years ago when I started to get awful pain in my bowels and the old familiar dragging pain in my abdomen again. It’s easy to shrug it off thinking that if you don’t have the equipment anymore you shouldn’t have these pains and if you ignore it, it’s sure to go away.

I don’t like taking medicines. I have reacted to so many over the years in the name of testing and some have left with me long lasting effects.

Due to the Endometriosis I also have a high threshold for pain and am stubborn so tend to have an I can get through this mental attitude.

But… Dealing with the pain I have been in over the past few months has been unbearable at times. I can tell you that Painsomnia is a very real thing. 
I have on many occasions over the past few months sat in the GP surgery asking, “What on earth is wrong with me?”

I knew deep down that something was pretty wrong and that I needed to get to the bottom of it all. I have been trying to wrack my brains and put my finger on it, times and dates. I keep a diary to jog my memories I do not always put find details in it. 

Sods law prevails, there are a few missing pieces in my puzzle.

The GP has been understanding, sent me for lots of tests trying to help me find out the root cause. So many symptoms have been unexplained and put down to stress. Life has been unbelievably stressful in the past year alone, but longer than that. But I suspected that there was more to it than that.

I’m not clutching at straws but sometimes you can join up the dots.
My GP suggested that I may have Fibromyalgia brought on by my circumstances. 

It is a condition I had heard of but nothing more I felt I needed to do some research.

That is when I received a lightbulb moment. There are some things which mimic Fibromyalgia symptoms. But suddenly there it was, in black and white in front of me.
The question, Have you been bitten by a tick? You may have Lyme Disease…

Take this online questionnaire and give the answers to your GP.

I did the questionnaire. Almost every answer was yes to what I had been going through lately. Don’t panic I thought. It must be easy to find out surely?

When we were in Scotland it was Springtime. It seems like ages ago. The deer were jumping around the garden, all sorts of wild animals trotting past and came to see us. the cattle were in the field at the back of the house and the grass had just begun to grow for the summer. It went from looking like a lawn to a field in a matter of weeks. Between the sunshine. It rained a lot and grew so fast. There is too much of it for us to mow and too many underground hazards for heavier machinery to get in there. We were walking in pasture on a daily basis and picking ticks of the dog every time he came indoors. Thank for for spot on type treatments to protect him. The drops didn’t stop him getting them but I think it made them drowsy and easier to see. Since the weather was warm outside the dog slept on the bed during the day since it was the only cool place in the house. I felt tired a lot so sat with him on the grass outside in the sunshine.
I picked them off him and disposed of them. But one morning in early May I think it was, I woke up with a massive bite on my back. I didn’t remember being bitten the day before and it definitely wasn’t a midge, could it have been a horsefly I thought. I asked my partner to take a look. It was strange he said. Really red and about the size of a 50p piece and looked like a bullseye. In a couple of days of putting Aloe Vera onto it, the itch died down a bit. I thought no more of it.

I started to feel really tired again and my neck hurt for a few days. Had I slept in a funny position and strained it. I slept without pillows but it didn’t seem to help either way. For no reason and had a colossal headache which lasted for 5 days. All I wanted to do was sleep. I couldn’t get much done, it was a good job that I didn’t have to drive. I just thought that again it was stress. More rest required so I was sleeping roughly ten hours a night and still waking up tired. I felt as though I was getting the flu, I had a temperature for about 48 hours, felt feverish if it didn’t seem to turn into anything.

I thought I had escaped a bug of some sort. 

Within a couple of weeks when I suddenly kept getting excruciating pain in my hands and feet I blamed it on the damp. I couldn’t think of any other reason it could hurt so much. It was like cramp and fire at the same time, burning from the inside out. I rubbed my hands each night and day with hand cream hoping to ease the pain. Had I overdone some gardening he asked? No, I hadn’t actually done anything with them. 

It was frustrating.

I’ve had this pain before. The year before and last year. It wasn’t as bad as this. 

We came back South and saw the doctor who sent me for blood tests checking for arthritis and rheumatism we waited for the results. Full blood work came back with a vitamin D and calcium deficiency but otherwise it was Ok. I already take a supplement daily so started to take two.

In the weeks since then I started to get the shakes, tremors I can sit doing absolutely nothing and feel my whole body shaking. Sometimes you can see them. The fire in my hands and feet has moved to elbows shoulders and knees and ankles. What was happening only sporadically is now a daily occurrence. The pain is constant and I am concerned. I grit my teeth a lot. It stops them chattering uncontrollably my own reaction to shock and pain. My whole body aches. I keep waking up in pain and being really short of breath. Like someone has stolen it away from me unexpectedly as I walk along the road. The dog has become used to my telling him to slow down and wait for me and toddles alongside me. 
About three weeks ago she mentioned the possibility of Fibromyalgia and then I found out about Lyme. There were warnings on Facebook in May, a little info but I thought that we were careful and if we got rid of the ones off the dog we would be alright. You could see them on him, so we would be sure to find them on us too. Or so I thought… I read more, a tick can be the size of a poppy seed. So what hope is there if seeing that and removing it in time. Not all ticks carry Lyme, well I’m grateful for small mercies then.

So what do you do to find out?

There is a type of blood test to check,  it is called ELISA but these are not conclusive depending on what stage it is at. It can take several weeks to present itself. Meanwhile you feel like death warmed up if this is anything to go by. Not everyone gets a bullseye bite either.

My legs keep going numb. The week before last I collapsed for no reason. I went to sit down and my legs went from under me. I was exhausted I had only just got up, had a breakfast and a shower and needed to sit down again my legs were wobbly. This was worrying.

I got an appointment for Monday last week. I sat with my work coach who told me I looked so ill. She told me I wasn’t fit for work and she doubted I could be through the day let alone an interview. I told her I would see the Dr that afternoon. I asked for the test and told the doctor my concerns. He agreed it sounds like you have Lyme Disease we’ll send you for it. You’ll need time to get better, at least six weeks and you need plenty of rest.

My hands are failing me. I couldn’t do my partner’s shoelaces up for him. My hands just wouldn’t work. I couldn’t get the lid off the open coffee jar the other day. I keep dropping things.
There are days when I can’t remember what I wanted to say, mid sentence I am struggling with the end of it. I have pain in my head it is fuzzy. Not all of every day but it is unlike me. I have had spasms in my head, the electric noise comes and goes and a flicker in my eye.

My joints are all clunky just like the middle of a damp winter they feel inflamed and sore.

Last night the numbness in my right leg travelled all the way up it.

The other night I felt that I might be having a stroke. I lay in bed panicking in fear in case I couldn’t move, slowly things did again and I calmed down.

What would happen if I did? How would my partner cope? What would he do with everything in the loft? He can’t even get in the loft!

I went into the loft the other day for a while, I am trying to start thinning out the huge amount of things we have amassed in readiness for a house move. Going through the boxes I started to make a map of the loft so that thing will be able to be found. 

Horrible thoughts and nightmares fill my nights at the moment. It feels like another massive change in my life which is beyond my control. 

Is my fate in the hands of another? 

If I couldn’t walk how would I get around my current home? Would we ever be able to get back to our home in Scotland, fix it up or live there again? What happens if I become incapacitated suddenly? Or worse still had a stroke leaving me unable to speak or write. There is so much in my head I have to find an outlet for it. 

I have read so much about this disease in the past few days and yet barely scratched the surface of it. I have read that if left untreated for any length of time there are things that can be irreversible. There is a threat of seizure, facial paralysis, people are unable to drive.

I must admit that the thought of just any one of these things being temporary let alone permanent scares the wits out of me. At the moment there have only been days when I wouldn’t dream of getting behind the wheel when I can barely stand up. There are other days I have ventured out and have had to Steel my nerves and shakes before getting back in the car, gathering myself and taking pain killers. 

In the past few months I have become much more reliant upon others to help me with things where previously I had been fairly independent. But it worries me that if there is no one available to help, because they have their own lives to lead. What happens if there is no food in the fridge and I can’t get out to get it. Or prescriptions that are needed for either of us. What if we cannot walk our boy anymore.

Just how bad can it get?

There are so many unknowns and I am trying not to let my imagination run wild. I am trying to be strong about it. Not needlessly worry my already very stressed partner who will be having more surgery this month. He asked me the same question last night. I don’t know the answers. We were walking the dog it was the wrong place to talk about it. I began to read some of the things that could happen out to him last week, he asked me to stop. He couldn’t cope with knowing so where does that leave me?

At the moment I do not have the results of the tests, as my partner said yesterday this is like the longest wait ever but we are all pretty sure that is what this illness is. If they confirm this on Wednesday then the meds start and let battle commence.
I was thinking over the weekend, I wonder if this has been going on for much longer than since this May. My work coach said it first on Monday that I had been so ill for a long time now. I burst into tears. It was a shock to hear it. I remember a couple of years ago 2015 when we were in Scotland in August that year. I was bitten by something we thought it was a horsefly then. It was an enlarged bite and I reacted really badly to it, was in. We for a few days as I felt so ill. I can’t remember much else about it except that my partner had to drive me to a chemist in the nearby town for anti histamine tablets and hydrocortisone cream which I used for about a fortnight after. It occurred to me that if this was an infected tick bite back then it could (just could) be the cause of some of the last two years of medical problems. 

I guess I have no way of knowing for sure we will have to take each day as it comes and just deal with whatever it throws us as usual. 
God give us strength.

There didn’t have the results yet I couldn’t wait and asked for antibiotics. I am taking them and feeling still worse. I spent Saturday in bed and I haven’t left the house for two days. I have joined a Lyme discussion group on Facebook to try and find ways to ease the symptoms. So far this illness is scaring me, I am trying daily to rise above my fear.

Slowing the Pace 

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In the past week or so I have been thinking a lot. I’m told that my brain is fluffy since we arrived. I do feel a bit more fluffy since I have arrived, less stressed about most things and I have caught up on my sleep at last. It is good for the soul being here. I am probably letting things wash over me where previously I might have worried about them. I don’t know if it is a good or bad thing I have only been worried about him. Lately he has been doing the worrying about everything else which is really bad for him. He is getting about 4 hours sleep a night and his health and brain is suffering doing himself physical damage because he is run down. But he is like a man possessed trying to get things done, as though his time is running out. I hope it is not.

We do not have an endless time here and will have to go back South for many reasons but he does not have to do it all now. There is time and there is no schedule up here. The summer is coming, we will make preparations for our next visit before we leave.

I have been in a fuzz on the full blood pressure tablets lately but really struggled with breathlessness when I have cut back to half, despite becoming fitter due to the hill walking. So although there has been less of the usual stress clearly my body is still letting me know it still needs that different pace and medication is slowing it for me.

I am two cups of coffee into the day before I can function but am sleeping so much. Knowing that Endometriosis can wipe out your energy reserves at the drop of a hat. I am still in pain but trying to work through it on most days, not overdoing anything just trying to do something constructive each day. It doesn’t help that our time clocks are way out of sync. We are getting to bed as it gets light whilst he drops off to sleep on the chair after dinner. I have trouble waking him up to get him to bed and by the time we get there we are hearing the dawn chorus. So half the day is gone by the time I rise. He leaves me to sleep and then resents the time it takes for me to get off the ground.

We are trying to raise funds here by selling off some of our excess items but there are not that many up here since the break in and the hardships that followed. We will do the best that we can in order to stay here as long as possible. We do not wish to return to our lives down South at the moment, they have caused so much misery and heartache in the past 12 months that I would rather have hunger and a very basic life here feeling safe and healthier than I have been in months.

I was walking the dog at 3am this morning. It was a beautiful full moon last night and the Farm track was lit up, bathed in its light with twinkling lights along the coast. It was almost silent, but for the small animals in the hedgerows.  During that short walk, everything seemed totally right with the world. I felt true happiness in an instant. I could have happily walked across the hills for miles. No one around, alone with the dog and my thoughts. Silent from argument and cross words caused by pain and stress, the worries washed away in the moonlight. I loved the outlines of the tress around in the woods that surround us here. The bull in the field that we visit every day, slightly surprised to see us and snoring gently by his barn.

We were totally at peace there in the moment. Whilst I walked along hoping and praying for a small miracle to enable us to stay here and calm our souls some more. It struck me that here in the darkness, I felt totally safe as though it was the most normal thing in the world to wander the hills in the dark at that hour. It was truly invigorating. I noticed that for the first time in months, I do not feel depressed. For someone who has battled with this depression for a few years now, it seems as though being up here has lifted a huge weight from my mind for as long as I am here.  It makes me wonder if a more permanent move would be better for us all instead of the back and forth.

When the weather is warm and we have just enough to get by, then we are extremely happy up here. A little left over would be a godsend. I worry about lack of contingency funds. Since the truck has played both of us up in the past week and we are several miles from shops for supplies.

As he heads off out today, the truck has struggled again to start. There is muck in the fuel lines we think from when it ran out of fuel and it is causing us real problems. The tank is full and there is fuel cleaner in there but it is still threatening to conk out at any moment which is an extra concern we really don’t need. A return from the mechanic and it seems that it might be something more an auto electrical problem, here’s hoping they can get it fixed.

Overload

via Daily Prompt: Nervous

It sometimes feels as though too much.
Indescribable feeling, not unreal as such.

Fatigued, exhausted from it all.

Setting myself up for a fall?

I try to sleep, but sleep won’t come.

Nowhere from it that I can run.

I worry it will swallow me whole 

Falling down this great big hole.

I feel the senses overload,

As I travel on this road.

Sometimes uncontrollable quakes,

After which my body aches.

Often feel as though bound and chained.

When I have felt my energy drained.

All the senses heightened here,

Shaking, sweating cloaked in fear.

Sounds so loud, then they are gone.

But they tell me nothing’s wrong.

Suddenly I’m temporarily deaf, 

Frightening leaving me bereft.

I asked them the problem to address, 

But they say it’s caused by stress.

I tried the calm. To meditate.

Can’t force the quiet, myself I berate.

My voice has changed, I cannot shout.

When I try to let it all out.

Swollen throat I almost choke, 

Sending the message my body has broke?

My mind and body feel detached,

Suddenly, became ill matched.

At this time I feel bereaved.

For what’s been lost, I am aggrieved.

I rest a while and floating free,

Willing just to return to me.

The blood is pounding around my head, 

Surging, thoughts fill me with dread.

With gritted teeth and clenched jaw,

My muscles aching and so sore.

Is this real pain or anxiety

there’s changes needed to just be. 

Cannot just stay powerless,

Wanting to relieve the stress. 

A deeper meaning I search to find,

Whilst hoping it’s not just in my mind.

The Frustration in Fighting for Peace and Justice.

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Try as I may, I am bundled up with frustration at the situation which we currently face.
Following on from the incidents of this week, as mentioned in my previous post The art of holding it together…. Or keeping calm in a crisis.(which is a bit of a long read)

I have been told that the man who tried to come and kill me has been released, whilst I was being told this, he arrived back to his own home opposite mine, at about 11pm shouting that he was back. I told this to the Police officer who was informing me, she sighed and said, “so he is already kicking off then.”

It is the sort of response that I would expect from a friend of family member, but again it seems the police are actually powerless to deal with this. They know exactly what they are dealing with here and yet they had to let him go on bail, because he said that he didn’t do it! As my friend put it quite succinctly, did they expect him to say, “Yes Officer, I am a complete arse, I cannot live or function in Society”

I found out yesterday, that he told the officer who questioned him that he had never spoken to me before, which was a complete lie but thus admitting in theory at least that he did on this occasion. They said that there was not enough evidence. I am pretty sure that in the three hours it took the police to actually find him and arrest him, he was able to return the knife he was carrying back into the kitchen drawer, only to remove it and come back over the road carrying it a further twice, but there was plenty of time.
They released him on bail, but did not apply any bail conditions, like staying away from me or my partner. I questioned this, since I had been told that he had been told not to come near or speak to either of us. The police officer said that he would have been told that, but it was not an actual condition of his bail. My question, “So there’s nothing to actually stop him doing that then” “No,” he replied.

The officer came to gather more information for the Crown Prosecution Service, who are now trying to build a case against him. The two witness statements given and a verbal statement to another officer were simply not enough for them. I offered two letters from a former neighbour which mention that he was taken into custody some time ago by riot squad for using knives, and had returned to his old ways he told me that they were not useful to this investigation. I was confused as they showed a previous history of violent behaviour involving knives from a further independent witness. I also mentioned the neighbour who confirmed for the policemen who attended that he had been throwing knives about whilst she had a conversation with us and shouting abuse at us, just after he attempted to run my partner down, just 2 weeks earlier.

The police officer forgot something when he left and returned moments later to collect it to find this man standing at our front gate, yelling abuse at my partner. Clearly the neighbour did not expect him to return. He searched him and cautioned him again and sent him back to his house telling him to stay on his side of the street and not come near this property. The ranting went on for a large part of the afternoon. I stayed indoors.

Yesterday early evening he was in his front garden, yelling across the street again and mimicking my partner walking about. Then standing in front of the house menacingly. He certainly had some acting skills, that man and seems to love a camera, he was acting up for it. He was also wearing a white chefs jacket in his new cunning disguise. Pieces of a puzzle, why would he have chefs whites you may ask, well if he was out of his garden with another kitchen knife, someone might mistake him for a chef.

Thankfully since he seems to have the thought pattern of a 17 year old and you can watch the cogs whirring, we are able to see things coming to a certain extent, but basically think of a set of circumstances put together with childlike thought and remain one step ahead at all times.

I again notified the council of this incident who I would have hoped had not got their hands firmly in their pockets on this occasion. However it seems that the fence they are sitting on is so far up their backsides that you cannot even see it. A local councillor who had previously promised to deal with the matter as mediator and to lend it some weight when this first began some seven weeks ago, has done nothing not been to see other victims and now feels he’d like to go and visit the man himself for a chat, telling me that there is compassionate feeling for his circumstances. In seven weeks, no-one has visited him yet and there is clearly absolutely no compassion for mine, or the other neighbours whom he has terrorised during this time or beforehand Well, I hope that the dear councillor takes a stab vest with him and I am sure that the neighbour will have his carer present, or perhaps the barrister that his mother provided to remove him from custody the other day. Most certainly he will play his part of meek and mild to the hilt, he will probably take his medication that day, wear smart clothes and wait until the councillor leaves the house and then he will go back to being the monster he has become. I only hope that they are not fooled for a minute, but fear that they will be completely taken in by the charade.

For him it is a fine game, which can be played day in, day out, night and day endlessly for as long as it takes by someone with far to much time on their hands. Meanwhile we cannot continue with our lives or get anything done. No preparation for a trip we were due to take in July and have yet to, since our days are taken up with dealing with the circumstances of his play, or the fallout from it. Does it all boil down to politics at the end of the day, since he is Special Needs. The response which I received from the councillor certainly led me to believe that.

The frustration I feel right now is so intense that I am wound like a clock. Suffering with Hypertension, you tend to know when you are about to become ill and I am about one step away. I am not sleeping properly, I am jumpy and cannot relax, my chest is fluttering and pounding and my heart rate is ten beats more than usual. I know this since the Dr asked me to check it before I left the surgery the other day. She is concerned and has prescribed me medication for acute anxiety. Although I would love the release of forgetting about what has happened and being able to relax. I cannot afford to let my guard down outside of the home. I am on higher alert than I was three days ago, when he was away. I am looking over my shoulder as I walk accompanied down the road. I would rather not leave the house at all, I only feel safe out in the car, to a certain level.

My home here is no longer a place of safety where I can sleep, relax and enjoy being. I crave the sanctuary of the Hill, somewhere I can take us both off to recharge our batteries and forget about the Trauma caused by this  Summer’s events. Or at least can gather my own thoughts into some semblance of order once again, without the domination of this person. I have the getaways so badly that I can taste it, but am powerless to get there. I have the offer to stay with friends, but a night away, would bring fear of what may have happened by my return, so I have declined thus far.

The other day, I was feeling an inner strength which I know is still deep down. I am digging deeply for it at the moment, trying to be strong and remembering that I have a voice and to make it heard. Surely one man cannot chase off a whole bunch of neighbours, well he has managed to terrorise them for months now. I do want to move, but I don’t want to be seen off and leave the other people around here to try and deal with it. They haven’t been able to before, if I have become a kind of ambassador for the local neighbours, then that may not be such a bad thing. To have someone fighting their corner for a change. We all want to be safe in our homes.

A couple of weeks ago, I repainted a bench in our garden.  It is there as a reminder, during the times when it feels so dark. It also sends a message to the whole neighbourhood. #LoveisStrongerthanHate Although I am finding it hard to love this particular neighbour after what he has inflicted upon us as a family, which is pain so deep and personal in a barrage of unprovoked attacks, by sharing some love amongst the rest of the community, we will become stronger.

I thought about asking my current landlords about moving me to another property as they did when I moved in here following a burglary carried out by my next door neighbour. But since this man’s mother has friends in high places who are giving her information, I know that I would not be safe there either, if he was not held in a secure unit he would come and find me, since he is not giving up. Also, I have asked myself the question who would want to move in here, I would have a duty to them to tell them that there was an issue with one or two of the neighbours, so who in their right mind would want to move to a place like this at the moment? Part of me would see this as defeat if I moved. Meanwhile, the torrent of foul abuse is launched upon me whenever I step out of the front door.

I don’t have the answer, I am begging them for something to be done. For this horror story to finish so that we can all get on with our lives, but at the moment I am stuck in limbo. I am unable to proceed and certainly not wanting to retreat. If I can hold my ground, I am in with a chance of survival.

The Daily Post – Recharge

O Grande Amor, the song of stress.

Stan Getz

I simply cannot explain it.  It’s bizarre but I had to listen to this fantastic album again yesterday to find out that this is the name of the song which I have noticed that I hum to myself in times of stress.  I had mistakenly thought it was another on the album, which I catch myself humming when things are getting all too much.  It starts off as an unconscious thing, but then I realise and it is like an old friend, immediately calming.

I first recall the regularity of humming it whilst walking through the corridors of the cardiac unit with my father, when he returned to see the consultant after having a heart bypass. But it has been with me far longer than that, occasionally I attempt to sing parts of it too.  I have owned the album for many years, since 1998 when I began to buy CD’s more often than cassette tapes. I have also found that after arguments it also mysteriously appears.

I have no idea as to the why?  I am unable to shed any light upon why of all the music I have heard over the years and grown up with, this is the one which returns and why there is one at all. Perhaps there is some deep seated reason I have yet to find out, but  I do love the song and I know that I love listening to Jazz music.

Stan Getz & Joao Gilberto – O Grande Amor