Slowing the Pace 

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In the past week or so I have been thinking a lot. I’m told that my brain is fluffy since we arrived. I do feel a bit more fluffy since I have arrived, less stressed about most things and I have caught up on my sleep at last. It is good for the soul being here. I am probably letting things wash over me where previously I might have worried about them. I don’t know if it is a good or bad thing I have only been worried about him. Lately he has been doing the worrying about everything else which is really bad for him. He is getting about 4 hours sleep a night and his health and brain is suffering doing himself physical damage because he is run down. But he is like a man possessed trying to get things done, as though his time is running out. I hope it is not.

We do not have an endless time here and will have to go back South for many reasons but he does not have to do it all now. There is time and there is no schedule up here. The summer is coming, we will make preparations for our next visit before we leave.

I have been in a fuzz on the full blood pressure tablets lately but really struggled with breathlessness when I have cut back to half, despite becoming fitter due to the hill walking. So although there has been less of the usual stress clearly my body is still letting me know it still needs that different pace and medication is slowing it for me.

I am two cups of coffee into the day before I can function but am sleeping so much. Knowing that Endometriosis can wipe out your energy reserves at the drop of a hat. I am still in pain but trying to work through it on most days, not overdoing anything just trying to do something constructive each day. It doesn’t help that our time clocks are way out of sync. We are getting to bed as it gets light whilst he drops off to sleep on the chair after dinner. I have trouble waking him up to get him to bed and by the time we get there we are hearing the dawn chorus. So half the day is gone by the time I rise. He leaves me to sleep and then resents the time it takes for me to get off the ground.

We are trying to raise funds here by selling off some of our excess items but there are not that many up here since the break in and the hardships that followed. We will do the best that we can in order to stay here as long as possible. We do not wish to return to our lives down South at the moment, they have caused so much misery and heartache in the past 12 months that I would rather have hunger and a very basic life here feeling safe and healthier than I have been in months.

I was walking the dog at 3am this morning. It was a beautiful full moon last night and the Farm track was lit up, bathed in its light with twinkling lights along the coast. It was almost silent, but for the small animals in the hedgerows.  During that short walk, everything seemed totally right with the world. I felt true happiness in an instant. I could have happily walked across the hills for miles. No one around, alone with the dog and my thoughts. Silent from argument and cross words caused by pain and stress, the worries washed away in the moonlight. I loved the outlines of the tress around in the woods that surround us here. The bull in the field that we visit every day, slightly surprised to see us and snoring gently by his barn.

We were totally at peace there in the moment. Whilst I walked along hoping and praying for a small miracle to enable us to stay here and calm our souls some more. It struck me that here in the darkness, I felt totally safe as though it was the most normal thing in the world to wander the hills in the dark at that hour. It was truly invigorating. I noticed that for the first time in months, I do not feel depressed. For someone who has battled with this depression for a few years now, it seems as though being up here has lifted a huge weight from my mind for as long as I am here.  It makes me wonder if a more permanent move would be better for us all instead of the back and forth.

When the weather is warm and we have just enough to get by, then we are extremely happy up here. A little left over would be a godsend. I worry about lack of contingency funds. Since the truck has played both of us up in the past week and we are several miles from shops for supplies.

As he heads off out today, the truck has struggled again to start. There is muck in the fuel lines we think from when it ran out of fuel and it is causing us real problems. The tank is full and there is fuel cleaner in there but it is still threatening to conk out at any moment which is an extra concern we really don’t need. A return from the mechanic and it seems that it might be something more an auto electrical problem, here’s hoping they can get it fixed.

Wishes

Wishes carried on the air,

Make me strong and make them fair.

Give me courage, my strength prevail.

I am not weak I will not fail.

Take this fire and send it out.

Make my words become a shout.

So I can end all this mess,

Return again our happiness.

Build this wish by power of three,

This is my will, so shall it be!

The Process of Therapy


So as I continue with the next session of therapy for this round of counselling. I thought I would share some more of my thoughts on the process.

28/2/17 Today’s Therapy Journey.

Today I spoke about what had been happening to me over the past 12 months since my last therapy sessions ended. I had thought that I was doing really well throughout the year and felt that I had made a good recovery and progressed. There was the fact that I followed this therapists advice when she told me to get creative again and it took me to places I did not expect. For which I am very grateful. I told her about this blog and how it has helped me in so many ways over the past year. Yes it’s actually been a year to the day since I started my blog and wrote my first post for India Blue. So much has happened. It began as part of my therapy and has grown into something so much bigger and better than I imagined back then.

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WordPress Happy Anniversary 1 Year!

We also spoke about how I could change what I need to and what my hopes are going forward. What do I want to do? I still don’t know exactly but I hope that I will know it when I find it.

I am happy writing, as little or as much as I do, it doesn’t have to be continuous but it does have to be regularly.

This week I have homework!

She wants me to write, specifically what I would like to achieve from these sessions. How I would like them to help me. My instinctive answer was “to get my head right” it was a bit blasé of me, a throwaway statement but right now it’s not one I have a definitive answer to.

Thinking for more than just a moment.  From this bout of therapy I would like to discover if after I have gone through it, I can find what I believe is out there for me to do and be able to do actually do it. I am guessing that I am going to need help with doing that, but don’t know to what extent yet.  I still don’t know what my future holds or even where to start, sure I have hopes and dreams I just don’t know how to get there, lacking in the confidence which allows me to take the leap that I may need to. I admit it, to a degree I am scared.

I would love to know how to quicken the healing process. I would like to know if the thoughts and emotions that I feel are linked to the PTSD I was sent here with in the first place almost two years ago. Or does it just stop and go away? Can it grow worse when faced with new trauma or mutate into a different thing? I still feel an emotional mess rather a lot of the time, ill equipped to cope and I would love to know how people who feel this way do. I know that life goes on. It’s happening all around me, but I feel somehow detached from it an other worldliness surrounds it. If I could regain that control over my life and my destiny then I think that it would help. But I question whether we ever get to do that, have any control over destiny, or do we just have to simply accept it? There again it is in my nature to question everything and perhaps too much. There are times when I am confident, my brave face goes on and for a short time I can face the world and take everything in my stride, but it is not natural to me at the moment and underneath I often feel I am crumbling. I go home and once again feel exhausted, my mind and body aching, totally fatigued. It happens after each therapy session and often after I go out, just to do the shopping.

But buoyed by talking about something that made me happy, (my blog) today I came home and was met by an email confirming one of my fears. I am sad. The CPS are not taking the case against my neighbour who attempted to knife both my partner and I last year any further. So it seems as though he has got away scot free with it. Which doesn’t thrill me at all and renders me fearful of what may come my way. I now want to be staying here even less than before and want to change things for the better.

via Daily Prompt: Quicken

All in a Blur

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This past few days have been a bit of a blur.

We have the news that my partner needs Major surgery imminently and has priority listing, we are waiting for a bed. His pre-op date has arrived within the week, it is soon.

It is almost like an altered state when I am outside looking in, except that it is happening around me. Lives going on, days going by, time passing elsewhere.

Waiting as though for something to happen. I feel dread, but know not what for. Just a sense of uncertainty on the air.

Perhaps some great change is out there and coming my way which will lift me out of this feeling. I am trying to remain positive so that whatever this is won’t bring me down.

The other day I had the first of my two long awaited appointments for different things. The hospital are going to do tests and scans, they really do want to get to the bottom of things.

A little fear creeps in, you know the nagging thought I hope that it’s not another hereditary thing. A bit like Hypertension but worse. No-one to my knowledge had Endometriosis in the family and Thankfully the line stops here from me. So far so good, my sister is Ok in that respect.

But this is not that, this is some old complaint, that hasn’t gone away,  over a period of time it has reared it’s head with new worrying symptoms. It could be related to the Endometriosis, which is the explanation I have given it until now. I talked frankly to my mother, about my beloved Grandmother and found out why she had to have a colostomy when she was young. Stage 3 Bowel Cancer with 8 weeks to live when they finally found out and operated. We worked out, she was in her 30’s. Younger than I am and she survived for about another 30 years. So there is hope. But I am scared suddenly and so is he.

The letter turned up the very next day, I had to book a SeHCAT Scan. The hospital don’t usually send thing first class post, he remarked.  That seems quick when I have waited six months to see the consultant and had symptoms for much longer. I called to book and have one in 2 weeks time. It comes under the “nuclear medicine” category. You have to take a pill, have one lot of scans and then return a week later for more.

There is pain that radiates through my nether regions daily at the moment and the Dog is extra cuddly, he is comforting me night and day should I worry?

I wake this morning, “what if I have the thing that I have been dreading?” Not the IBS which I have been living with for years but something else. Ever the practical one, the only thoughts going through my head being how would he cope with every day if I couldn’t do things? I will have to sort the loft out, he can’t get into the loft. If we had to move then he wouldn’t be able to empty it if I’m not able to. If I was really ill, we would have to rely upon others going up there. It’s odd the things that go through your head. It’s been a strange week, filled with both pain and uncertainty.

via Daily Prompt: Blur Image: Morguefile

Tremble

As I tremble, from the sheer weight of my feelings underneath it all. 

My hands are shaking, the blood races around my body.

I roar, the tiger inside momentarily wounded. 

Reliving the moments, I feel the pain of my recent past. Hurting from it all, renewed anger and sadness rising from the pit of my stomach. 

It is laid bare before a new person who didn’t know. She is in tears as I leave. Why did I do that to her? I did not do it on purpose or for gain it is my cry for help. The long awaited appointment. 

The ups and downs of thinking that I may have healed myself but the reality that the painful process has just begun again. I return to the safety of my car, where I sit and look at random things for a few minutes. My head pounding and a feeling of sickness creeping through my throat. I need to calm my nerves feeling numb, a bit dazed and confused. The next step in my therapy.
via Daily Prompt: Tremble

When it’s alright on the outside.

This is the inspiration beind this particular post. This picture came from Facebook as so many do but in particular advertising awareness for Crohn’s & Colitis.

It got me thinking about just how many people I might know who are dealing with an invisible illness. The ones where it does not show, people who we are sure they are alright because they don’t look ill. It occurred to me how  almost everyone we know fights a battle of some sort.

It could be cancer, mental health, abuse, addictions, or a physical illness or disability. It could be anything at all.

It is very easy to not think about what other people might be going through and just react to a comment, a look or an emotion but in a judgemental world that we are living in, just take a moment to think about it before your own assumptions take over. Some fight it all alone whilst others can have a whole network of support. Some simply cannot cope and will shut down hoping for the storm to pass. Some will talk about it whilst others will not everyone is different.

Respect those differences but if you know someone who has is coping with an illness invisible or not, just a small gesture to show that you are thinking of them, or that you care can mean the world when it all gets too much.

I know we have just had the season of goodwill and you might be feeling that New Year warm fuzzy feeling but can we extend that around the rest of the year and it might just start to make a difference in our lives. I’m not asking for world peace, after all who am I to ask?

How Many Do We Get?

A leading question and forgive me for a moment if I’m going to go deep…

I am talking about how many chances to make a new life? Something better than before, or at least different. I am sometimes likened to a cat by those who know me, but I wonder whether I have the nine lives people so often speak of. I don’t know how many chances I have had. I have never thought to count them before or even how many I may have already used up and I’m not going to start now.  For whatever the answer is, I am grateful.

What I do know is that throughout our life we are given so many opportunities to make it different. Some we may miss. It may be that we simply don’t see them at the time. Or that they come out of nowhere and we reach out and life as we know it changes completely.

I want to tell you about one such time in my life. It was 8 years ago (Oh how time flies) this week, just days before my Birthday.

I had prayed so long for the moment, hell I’d even begged for it. The operation which I was sure would change my adult life from the one that had been plagued thus far with pain and illness. Once they had found out that the cause of all this misery was Endometriosis, an incurable condition and I had met the specialist, then he could set about sorting me out finally. I was overflowing with hope of what would come to me in my new life after they agreed to give me a full hysterectomy. The pressure in the past that I’d felt, to provide children to complete my existence was suddenly removed and I could finally move on from it. By just announcing “I can’t have children”, instead of the wistful ” I don’t have children…. yet.” Somehow the weight was instantly lifted and it was just accepted by others as well as myself. It was also possible that since my pain and symptoms were cyclical and my menstrual cycle outweighed the rest of the month, this surgery just might put an end to it in one fell swoop. It was a drastic approach, but I had tried everything else that was suggested and it hadn’t worked, I was by then absolutely desperate.

Of course I had the last minute doubts before the operation because it was so final. But, the pro’s definitely outweighed con’s in my mind as I thought about the opportunity to actually start living and be able to follow some of my dreams without being held back by my condition at last. My partner was a tower of strength and supported my decision all the way, he wasn’t going anywhere he said, we were in this together.

There were moments in the past where I had gone after a dream and encouraged by my partner had gone far and achieved things that I had not thought possible.

I awoke from the operation euphoric. Full of hope for what might come next in our lives, after the three months recovery time at home I would need. Thankful for being given the chance at starting my adult life over again. I was now going to be able to go out there and actually begin to live it! I was also extremely grateful that this time I had understanding bosses who had agreed the time off on full pay that I would need. It was such a huge relief that we did not have that particular stress hanging over us through that.

I healed really quickly on the outside and felt invincible and ready to take on the world. My partner held on tightly to the reigns for a while to stop me doing something that would set my recovery back and I started straight away on HRT patches so that I wouldn’t go into a menopausal state with immediate effect. I didn’t want to go through that on top of it all and since I was young I wanted something that would protect me from the brittle bones often suffered post menopause for as long as possible. I am still using them.

So how do I feel 8 years on from this?  Did my new life begin? Was it as awesome as I thought it would become back then?

Well, yes I got a new life compared to the old one. It started to be like most lives, it’s been a pretty mixed bag.  Not always awesome, it has been filled with ups and downs, we have been sick and healthy, jobs have come and gone. I have lost people and loved ones along the way. I have fought for what I believed in, I have tried to remain strong even when I did not think it were possible.  I have often felt as though I am at rock bottom but I have had my loved ones beside me along the way but most of all it is not over yet.  There is no “fat lady” singing yet.

I have gone sometimes off at tangents over the past few years, not really knowing where it would lead but I want the other chances which might be open to me.  A life can be long or short, we have no way of knowing which of those we will have.  As mine continues I will look for the opportunities in the hope that they present themselves as often as possible. I hope I will find them, at the corner of every street, on every day that I am lucky to wake up and to breathe and in every person I am lucky enough to meet. Yes, I do see those things as blessings, sometimes in disguise, but experience is gained from every encounter.

I haven’t yet worked out for my purpose is for this world, I feel as though somehow I am being led to help others.  I am not sure of the direction but I am certain that I have a place and I belong here and I want to make a difference, somewhere to someone.