Envy, Just Look at What You’ve Missed…

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Just look at what you’ve missed…
So, don’t be jealous, be thankful.

I had a poor childhood, we often went without.
I was Bullied at School.
I was abused as a Child.
My first ‘real’ boyfriend cheated on me with my friend.
I had a miscarriage.
I developed an illness which is incurable.
I had a stalker.
I almost lost the love of my life to surgery, twice.
I have suffered in pain for years.
I have had several horrendous jobs, some resulting in redundancy.
I have suffered loss and grief time and again.
I have been raped.
I have suffered with depression.
I have considered suicide on several occasions.
I have disfiguring injuries.
I have had major surgery, which has changed me.
I will never have the joy of bearing children.
I have no child to care for me when I am old.
I could have lost my soul mate to Cancer.
I have had my life threatened with violence.
I have had people threaten to burn down my home.
I have been at rock bottom so many times that I have a seat there with my name on it.
I am fighting battles which I have not yet won.

So before you envy me for the things that I have in my life, think and be glad for all the things you have missed out on.

The Daily Post – Envy

Sheet Music and Musical Events.

I remember that I am sitting in my Grandmother’s house, at the time when I was learning to play the recorder. I had to learn how to read music. It was the only way I would progress and be able to play in the school orchestra. As a small child, I did not have the lungpower for a proper wind instrument. I had only a small voice and couldn’t quite muster enough puff to play for any length of time. However, my Grandmother persisted with me. She would always help you if you were willing to be taught, laughing as I write this as the reality dawns that I am exactly the same in that respect. You shouldn’t waste your time on people with no wish to learn. If only I had remembered that in the training sessions of my later employ, when others who did not wish to partake, sat looking blankly on, saying that they just, didn’t “get it.”

I remember her running through the notes with me, singing which were which and explaining each one of them to me and where they would be within the piece of music.
Gone with the mists of time I now do not recall any of the knowledge behind it, I remember that I like the treble clef with it’s artistic swirl at the beginning of a piece. Whether it will return or be dragged from my mind kicking and screaming remains to be seen. I had decided that I wanted to learn a musical instrument. The recorder was a cheap instrument for my parents to buy, they couldn’t afford a trumpet, my hands were so small that I probably in truth couldn’t hold one. I could barely reach the bottom hole on the recorder. I had a Hohner recorder, it was black with a cream line around each section where it screwed together and you could dismantle it for cleaning, along with a plastic cleaner like a large needle and a piece of fabric threaded through the top. You pulled it through the instrument to remove saliva deposits so that it didn’t sound like you were just blowing bubbles. I also had a bamboo recorder, which had been acquired from goodness knows where, but my mother deemed unhygienic and spirited away. I think that one had come from one of the jumble sales. My Grandmother For the classes at school, I was required to learn to read music, so that we could play whatever was required for assembly or the forthcoming concerts.

Although I have a love of music, playing an instrument did not come easily to me, around the same time, my parents decided to play and sing together in a band. My father on guitar and them both vocalising, my mother also had a tambourine to accompany them. They enjoyed themselves and would take us along to visit other churches, parties at houses of the people in the church and various places, the songs were religious and they were part of the local Baptist church congregation. They would take my brother and I along. I played a tambourine to join in but I think my brother just sat it out, he wasn‘t one for singing or musical instruments. It was at this time, that I recall they played at an asylum, it happened more than once, but I remember feeling distinctly uncomfortable being there. There were patients milling around and a few “orderlies” standing around listening to them in a room. It seemed to go on forever and as small children do from time to time, I needed to go to the bathroom. They hadn’t finished their song, but I couldn’t wait, so telling my Mother where I was going, they continued to sing and play. I remember walking along the corridor to the toilet, I saw a man was coming the other way. I looked at my feet, attempting not to make eye contact and attempted to walk on past, he suddenly veered towards me and I looked up, at that point the man shrieked at me and clasped his hands to his head, then went off to bang his head against the wall. I ran away as he laughed manically. There was a room with people in further down , a lady screamed out, someone told her to calm down and not to fuss, what on earth were they doing to her in there?

It was quite some distance from the room where my parents were, to the visitors toilets. I don’t think that the organisers had put much thought into it putting us in a lounge away from the usual visitor area. I didn’t like the place, it made me so terribly sad to be there. In this huge and beautiful old building, on a bright sunny day with a wonderful wide expanse of garden outside, where no-one was allowed to play and where supervised people shuffled along the pathways, unable to walk on the grass. A place where despite the singing and praising the Lord, all I could hear was screams and cries. I went to the bathroom and despite my fear of being locked into places, I locked that door. I did not want anyone to come and get me, besides I had to pull together enough courage to make it back along the corridors.

I ran back to the room, clattering along the corridors, I saw a lady curled up in a corner, two nurses were trying to get her back into her room, she clearly did not want to go, she wrestled with them. They asked me what I was doing in that part of the hospital on my own, I shouldn’t be there. I explained that I was going to the toilet. Keep going they urged me and don’t stop to talk. I flew along the corridors and crashed back into the room, the parents were still playing, surrounded by inmates who were now singing along in their own way, rocking back and forth, emitting strange noises. I’m not sure, but think that it did them some good,. I was quiet on the way home. I asked later told my parents that I didn‘t want to have to go back there. I was scared of the people there, they were in the process of telling me that I shouldn‘t worry they were only people who were sick, that we were trying to help. But I was adamant that I did not want to return and told them what had happened when I needed to go to the toilet. My mother berated me for not taking my (older) brother with me when I went. I said, he wouldn’t be allowed in the girls toilet. So after that they agreed that it probably wasn’t a good idea for me to go again. On going to school, the next day I was asked in class what we did at the weekend. I told the teacher, she did not believe that I could possibly have been there, why would a child go to such a place. Surely I had made it up, some of the children decided to be cruel, chanting that I had been to the “nut house” and that my parents must have taken me there because I needed to see a Doctor, and I should have been left there. My sleep was disturbed for some time afterwards, I regularly had nightmares about the place.

I think that after that, my love of learning music waned. I do not remember continuing and being a part of the Orchestra for the school concert. Later I looked at learning the piano, but my parents would not entertain it. It’s a shame since in my earlier years, we actually had a piano. I did teach myself “Do Re Mi” from the Sound of Music on the piano which was held in a room at a church we later attended, it was a beautiful grand piano which had rolls of music which could play fantastic pieces, if you wound it up, I would spend hours in there just listening to it. Someone had donated it to them and it was kept in a room there. I always snuck in there to play it whenever I had the chance. Most people learned chopsticks, I was different. Looking at a page of music, I now only see notes and not a way to play them, maybe I have blocked it all out

Years later, my friend was stationed at the same hospital for part of her nurse training, I stayed well away from the building but did visit her in the nurses quarters on a few occasions.

May is Mental Health Awareness Month. I saw on Twitter yesterday, I think that is why this particular memory came back to me. At eight years old I decided that I never wanted to be put in one of “those places“, who knows what happened there, but the people were so very broken, they would never be the same again. I did not know, nor was it pointed out to me that sometimes people actually recovered from mental illness. No-one thought to explain what mental illness was or that it affects people in varying degrees and takes on many different forms. For many years, I had one view of it, I thought that it was where people “ended up” since there was often talk of suicides there and I certainly did not want to go there or join that club. To this day, I struggle with seeing people rocking, it takes me right back to that time. I do want to try and help, to hold them close, take away their pain and stop them from doing it. Seeing that person rocking years ago, throwing their body into the wall, faster and faster has stayed with me. I did not understand the relief that could possibly be gained from literally banging your head against the wall, later I figured it was as they tried to escape from themselves and the pain that they were in. I have always tried to avoid doing the headbanging, it tends to be a more subliminal thing with me. Years ago, I watched the film One flew over the Cuckoo’s Nest, with Jack Nicholson. Although I could appreciate the acting in it was brilliant, I found it one of the most disturbing films that I have ever seen, it brought back so many of the images from those visits to the hospital which had lain buried for years. There is a stigma, no one wants to be thought of as unstable, deranged or messed up. We all have our moments, some last longer than others. Some feel as though they are insurmountable. Some get help and iron out the crumpled bits, living to fight another day. Some fight their own battles for years, denying they even exist then life slams your head into that wall and you get a wake up call.

Grief

Grief

It is strange how it affects us. Creeping up on you and hitting you over the head, leaving you weak at the knees once more, crumpled and emotionally exhausted. The effect it will have on the unsuspecting is incomprehensible.

They say that we shouldn’t dwell upon the past, although I agree it is not safe to do so, I do firmly believe it is what shapes us. Although it is not wise to wallow in grief, it is essential to enable us to heal from the pain that is caused by our loss. It may be a quick process for some, or achingly slow for others, appearing again after laying dormant for years. One thing is for sure, when you come out the other side of grief, it cannot fail to have changed you.

Deliriously Deluded Ramblings Vol 2

Jolted awake from her sleep, by the bitter taste rising in her throat. She had no idea of it’s sudden cause. The taste acrid, it burned inside her throat. She was certain that she saw something in the darkness, laying on the edge of the mattress. It looked like a furry caterpillar, or some strange sort of plant life and she watched as it moved away and disappeared. Had she dreamt it, she searched on the floor, but it had gone. Her breath was awful, had she swallowed something in the night, an insect perhaps? It felt as though something had died in her mouth and she felt the soreness within her throat. Had the infection from her ears travelled there? The thunderclap in her ears just a week before had left her dizzy and disorientated as though her head was under water, she was not able to hear properly.

Looking at the clock she was wide awake. Three hours had passed since she had hit the sheets, exhausted and craving sleep. Was it a reaction to the stress? Acidic plasma filled her mouth, she hauled herself to the bathroom resisting the urge to be sick. Minutes later her tongue sore from scrubbing with the toothbrush as she tried in vain to rid her mouth of the bitterness she inspected her mouth for signs, the now familiar white lumps had appeared again at the back of the throat. she hoped that she would not suffer with another outbreak of ulcers to join them, but feared that it may already be too late. In recent years, they had become her body’s first deep distress signal. Her mouth swollen and sore, her lips feeling as they were on fire…
The past month has been rather dark at times. Don’t get me wrong, it is not all doom and gloom, I have had moments of Happiness thrown into the mix and clarity at times, but I have been suffering with a physical illness which really took a hold of me, causing infections, delirium and fever to ravage the body and manifest in so many ways. It has rather taken me out the way of my path to Happiness, which I had decided to journey onto and up until then I had felt that I was doing quite well.

It always catches me out on how illness can affect the brain as well as the body. I should be prepared for it by now, after years of illness with Endometriosis caused havoc upon my brain and eroded the person that I was going to be, there was so much that needed to heal. It is logical that when the mind or body is under stress, then it has to come out somewhere. But I often feel that they are seemingly unconnected it can cause your worst feelings to come up to the surface, fear, loathing, depression etc and memories you had buried from the past all racing to the fore.

Once the illness is gone, you start to rebuild what you know and try and return to your normal self. Sometimes it is easy, other times difficult, at the moment, the feeling of what I have been going through for almost a month now is still fresh and raw in my mind and I am not yet over it. I guess I am trying to rush the process, having felt that I should be much better by now, my creative juices have dried several times during this, although there have been spurts of writing, it has not exactly been the flow which I had experienced prior.

It changes you though, you feel things are never quite the same again, when you have experienced the ravages of the fever demons tormenting your mind and body and starving you of sleep when you are wracked with pain. Whatever the hell this was, I certainly don’t want it back. I will be glad when it is over and wave it goodbye. It’s a proven fact that people are getting more sick, it can‘t always be avoided I know, but it knocks you for six when it hits. I also make a mental note to stay well away from anyone who is unwell and boost my natural vitamin intake wherever possible.

Venturing Out

Stepping out slowly, almost tentative,
Your emotions heightened, sensitive.
You hear birdsong and start to listen,
A sudden emotion your eyes glisten.
Tears will flow upon your cheek,
Havoc on your emotions wreak.

Finally decided to leave your home,
There’s so many things as you roam.
An onslaught arriving on your senses,
Too much to handle, no defences.
People move around too quick,
A sudden encounter, you may feel sick.
But you have to try, come what may
To venture out, almost every day.

Just a small walk upon the road,
Need the release, such a heavy load.
A group of children always hustle,
Mother’s walking along will bustle.
Sights and sounds of the outside,
The instinct may be to run and hide.
But out there to the world you must return,
The change is that now you are willing to learn.

A small part of you, that you’re willing to give,
As you wander around where you live.
Exploring again, your steps you retrace,
Re-learning about this wonderful place.
Although you feel that your progress is slow,
Once out of the house again you know.
It’s been so long that you’ve been away,
One small step means you’ve found your way.
Don’t see you’re taking it too fast,
This recovery will have to last.

Fighting the urge of wanting to go.
No you must return to smiles and “Hello”
Not back to the safety of your four walls
Wake Up! This is your clarion call.
Life begins the moment you start,
So let it back in and open your heart.
To all that it has to offer,
When you feel that you’re getting better.

Isn’t it strange?

I am constantly amazed as to how even though it is sometimes painful, I seem to dwell upon the past so much.  There is so much in it which I would rather forget, yet it haunts me and will not leave, opening up from time to time things long forgotten.  Like the proverbial plaster ripping which opens the wound again, just as it has begun to heal.

That’s not to say that all of the past was bad, far from it in fact.  I have many moments which I also dwell on because they bring happiness, memories of loved ones, experiences and moments which I would not want to lose.

I find that sometimes, a thought will pass and something within me just reaches out and grabs it.  Something clings on instead of letting it go, suddenly in that moment I can relive it.  I am there, in the moment.  Wouldn’t it be great if at that point, in times where things have gone wrong, or pain is caused I could put them right, change the way things went. To be able to make them better, remove the hurt that may have been caused.  Extend the happiness. If only…

Moving On

Time went on and she hoped for reprieve,
Now was the time she had to believe.
She gathered momentum, all set to go
The strength that took he’d never know.
He thought she’d get right on track,
That she would come crawling back.
But things had changed for her and you,
Life’s too short, the years too few
To sacrifice ones happiness,
staying together under duress.
Don’t think to hurt or shame was meant,
Just a chance to live, without lament.
Some respite from the drudge of life,
Meant to be much more than a wife.
She craved to be cherished like no other,
Much more to her, than just our Mother.
Set apart from the rest, she has such talent,
She should use the gifts that she’s been sent.
She’d raised the family, the time was right,
Had grown tired of the fuss and fight.
She packed her bags, set off, departed,
Now for her, her life’s just started.
Could not hope that you’d understand,
A different life for her was planned.
The freedom for her to do as she pleased,
The burden of her thoughts had eased.

He never thought that they would part,
And would take with her, his heart.
She caught him somewhat by surprise,
Grew fed up living with the lies.
And on it, suddenly the light shone.
When he could see the love had gone.
Sometimes resentment would start when,
He’d think of her fondly now and then.
Although he felt she’d broken his trust,
Time marches on and forgive her he must.
Didn’t figure on such loneliness,
The effect on him of such distress.
Feeling as though a downward spiral,
Going through periods of denial.
But as years go by, I think it’s shown
That he can enjoy a life of his own.
Had never thought with emotions he’d toy,
But a new way of life he’d come to enjoy.
A place where he can enjoy the limelight,
Return to peace and quiet at night.
One where he has freedom to roam,
Do as he pleases, no one at home.

Endometriosis – A few things to know.

As we are still in Endometriosis Awareness Month, I thought I would pass on a little experience regarding how this condition or disease might affect you, If you suspect or have been told that you have Endometriosis, here are some of the warning signs I’ve noticed and been made aware of, I thought I should share them with you in case no-one else has.
Firstly, Endometriosis affects 1 in 10 women, so you are never alone.

That if you have very heavy and painful periods with abdominal pain during the rest of the month you may have this condition.

It is not currently a recognised disability.

It is an invisible illness, a lot of the time people will accuse you of faking.

People will not understand, unless they have ever been affected by it either themselves or with a loved one.

It can affect your fertility. But, some are lucky to be able to bear children.

It can be a hereditary condition, but it can also skip generations.

You will often feel as though your medical team are not listening, some are just blissfully unaware.

Your diet will often be affected by this condition try eliminating foods and re-introduction to see what suits you and what does not.

You may develop IBS, this could be down to diet, medications or even just a progression of the disease.

Your weight and/or size may fluctuate. Be prepared to wear larger, more comfortable clothes at times when you need to.

Sometimes you will bloat with wind and it is excruciating. – Peppermint is your friend!
Having a child will not cure it, neither will a full or partial Hysterectomy. There is actually no cure.

You will be prepared to try almost anything to help your symptoms.

Until you are diagnosed, you may at times suspect your sanity.

It can take 7 years to diagnose Endometriosis, but sometimes even longer, it took 15 for me.
You will need people around you to help you, when your illness is bad. Accept their help.

Educate your friends, family and employer to this condition. Although it might affect your life to different degrees if they are aware, then you have a chance that they could be more understanding.

If your GP or Gynaecologist refuses to assist with diagnosis, then get that second, or third opinion. Referral to a specialist for this condition is key. General Gynaecologists often do not know about Endometriosis.

It affects people in different ways, but it is a debilitating condition, so if you have to take to your bed, just do it. Make yourself warm and comfortable.

Your symptoms are aggravated by stress. Try to find a quiet place to be calm and rest. – I know, this is often far easier said than done.

Although it is often related to your menstruation. Adhesions can attach themselves to other organs, this can cause you pain and other health issues.

After a Hysterectomy there may be no sign of the disease and you could be pain free. But your pain may also return and you may suffer previous symptoms again.

Endometriosis can also attach itself to the bladder or bowel.

You will know your body and it’s patterns, If any of your symptoms change or worsen, don’t be afraid to call your Doctor.

Try and raise awareness of this condition, there are many women out there who have no idea that what they are going through, is not a normal sign of growing up and are just trying to cope.

There are many support groups, Join one! They are filled with people just like you who are fighting the same battle as well as their own. You will gain, advice, make friends, gather information about the disease and how to fight it.

Looking Back, A struggle to write.

Looking back through some of my old papers, I often find things I’ve written in the past. Sometimes, I feel as though they should stay there.  But as time goes on, they give a better picture of who I am today and how I arrived here. I wrote this many years ago around 1995 I think.  I had written poetry before, some of it will appear here later, but I regularly struggled with writers block.  At the time I painted it onto a bottle after I had drunk the contents. I found the bottle a while ago and transferred it to paper. A picture will follow if I can find it again…

It seems I cannot write things
Till I’m down or even depressed
As when I try to do this
They make sense even less.
It seems I have to be hurting
Very deep down inside.
Unable to tell him things,
When so many times I’ve tried.
So when I try to write things down
My true feelings come out right.
Sometimes you know I wear a frown
And sit up alone at night
I sit here with pen and paper
Cramming words down on the page
It’s been like that for years now
And I thought it’s just my age
Other people will rant and rave
Or bottle things up for years
But how I feel is what I write
Mixed up with a few tears.

 

 

 

 

March! It’s Endometriosis Awareness Month

DSC_0184It’s March and with thoughts of Spring, we head into Endometriosis Awareness Month. Like many other months of the year, those who are sufferers and their loved ones choose to raise awareness of the things which have affected their lives, in the hope that it will bring answers, help and encouragement to others.  This poem describes my own ongoing fight with this illness and I hope that it explains some of what our #Endosisters and #Endowarriors go through.   If you would like to donate funds into the research of this illness please do so via https://www.endometriosis-uk.org/ and give them the help that they need and if you see someone wearing yellow this month, or even just the adornment of a yellow ribbon then this might just be what they are showing their support of.

Just Living With It….

I lay to rest as my body quakes,

Just how long have I stayed awake?

My limbs are sore and continue to shake

Again the bed I’ll have to remake.

I roll around here and there,

Sleep won’t come and it’s not fair!

Fever and delirium often appear,

Managing to awaken the fear

There’s pain in my stomach, fire in the pit

Tired and aching from all of it.

Sometimes in pain and sometimes I’m numb,

Then to the tablets I’ll succumb.

Gently rolling from side to side,

Waiting for it all to subside.

Exhausted from the tossing and turning,

For a decent night’s sleep I am yearning.

Swelling and Bloating are part of it all,

Feeling so weak, you often fall.

Friends and Doctors think we are mad,

When to bed we return as pain gets so bad.

Surgery on occasion they’ll offer,

In the hope it’ll make you better.

Or hormones and potions by the score

For any reprieve you’ll ask for more.

Sometimes some small amount of relief

Will spur you on “The Cure?” a belief

But they haven’t found one, they’re testing you see,

Medication and therapies on you and on me.

A silent illness it’s often said

So easily discounted as “All in your head”

But it is real, and it is there,

If you’re lucky you’ll have someone who’ll care

You’ll need them with you by your side,

When away from the world you’ll want to hide.

Quite often leaves you childless

Weeping in offices, you are a mess!

As you’re told and trying to understand,

You’d better take someone to hold your hand.

You have your turn of the “monthly curse”

That never ends and you hope for a hearse.

The endless pain to take away,

The emotional torture at the end of the day

Removes the chance of happiness

When those around you couldn’t care less.

Many years later, when you feel insane

They suddenly tell you it has a name.

So what have I got? What is this?

Well, they call it Endometriosis

How did it get here, suddenly arrive?

Will it finish me off or will I survive?

Well, it fuses your organs and causes you pain

And just when you think that you’re through it again

You feel that familiar dragging, pulling around,

Know it’s back, but not where it’ll be found.

Your digestion is poor, your bowels misbehave

A day without this is all that you crave.

On rare days you can feel so well

Invisible illness, Endometriosis Hell!