Advice to the Free Spirit

 

Advice to the Free Spirit.

While you are being a free spirit,

Take a moment to think of the ones that are left behind.

The ones who will take care of things in an emergency,

The ones who will bring you home if it ends suddenly.

Make some arrangements so that they know

What you would have wanted,

If they are doing the right thing,

Or where to find the important things.

Save a little to provide some security,

To cover the cost of a bad decision, or an accident.

Share with them more than just your fun,

Let them know when you are fulfilling your dreams,

Or chasing new ones.

For it will help them in their grief

To know that you were happy,

Loved and cared for,

Had friends in your heart and at your side,

Who will share your last moments.

That you did not die sad or lonely.

Whilst you are being a free spirit,

Remember them and tell them they are loved too.

That you aren’t running away,

But that you are just chasing your dreams,

Living the best life that you can.

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To Those Who Are Getting Help. 

This is a bit of a follow on Post from the other day about CBT When Those Three Letters Mean Totally Different Things and when it’s just time to Breathe!

Someone very dear to me and whom I haven’t seen for some time had told me that they are getting help to work through their issues. I am so happy for them since although I love them it has been really hard for me to stay away but I had to for my own good. I didn’t want to be hurt again. So this is kind of like an open letter to them and others seeking some answers from within who have decided to speak to a professional.

First of all, I am proud of you. Now if you don’t know me personally then you might say, so what! But, down the line if you get to thinking have I done the right thing? Trust me if anyone is proud of you then it helps. The first step is to recognise that there is something you need to sort out and by seeing a counsellor then you may find that you understand better and can help control the emotions that wreak havoc.

Secondly, if you get past the group therapy of a CBT course and feel you need to see a counsellor one to one you are going to feel emotionally exhausted once you start talking. The process of opening up and talking about your innermost thoughts is going to hurt like hell so you are going to need some pretty tough people around you as you act like a child from time to time and let it all out, which is totally normal and part of your healing from whatever you are going through. You will release whatever is inside and the way it comes out may surprise you. Leaving you thinking Who is this person I fail to recognise? 

After your sessions, take a walk on your own. Sit in the car for a while, take some time for yourself to calm down before you drive home. If you like me felt sensory overload then you might also want to escape afterwards. But although you may want to flee the scene, for goodness sake do not drive when you are emotional if you can avoid that since you are most likely to lose concentration which could cause an accident. I used to sit in the car for about half an hour, do something like check my Facebook or text my friends and family or call them before heading off and then I used to just drive.  Go and find something beautiful to look at somewhere, or feel the wind on your face for a while.

I was also advised to Do something for yourself, just you every week, then every day. Just one small thing can make a huge difference when you are running around after everyone else. For me it was to become creative again and write whenever I can. I still come up against obstacles when someone would rather that I did something else. But I am hanging on to this one thing for me although it began as a small part of my therapy. It has become so much more.

At the end of it all you may feel a bit lost and wary of people since you have opened your heart and mind to a relative stranger and are still pretty raw. So take time to heal your mind, body and soul. If you can, during this time try to avoid getting drunk or high (if either of those are your thing) since you may feel differently to how you were before and may not actually recognise the person you are becoming.

It will take time so allow yourself that. Good Luck on your journey and when change begins to happen for you, however hard this might be, embrace it. You never know what might happen. Remember that there is a future out there and you have a part in it.

A Familiar Pain

As I read posts here and there about women going through the endless quest for a child, I cannot help but feel their pain and the suffering they are going through. All those memories suddenly returning of being hopeful that this was the month when my period would not appear early and the tightness in my abdomen and swollen stomach would mean something other than an Endometriosis flare up. My heart goes out to these ladies every time that I read of their torture. There have been two such posts that have popped up on my news feed this week. I hope that those ladies do get their wish and are able to bring precious souls to the universe. I know that if they are lucky enough to do so that they will shower such love upon their miracle babies and praise the IVF treatments they put themselves through to get that longed for baby.

I do not have an IVF journey to share instead I tried everything that the Drs suggested just to try and be pain free and it wore me out. My partner had not expressed a wish for more children so when I was told that we would be eligible for one course on the NHS at a time when I could not have felt so ill equipped to deal with a pregnancy we had a big talk. He could see that I was ill and he told me that from his point of view he had everything he wanted, he did not need a child to be the icing on the cake. He was happy with me so I wasn’t under any pressure to bear children. I thought that when the Doctors told me at 17 that I wouldn’t have children had really done a number on me and I hoped that one day I would just prove them wrong. Alas it wasn’t to be. So as for IVF I would give up my chance and not pursue that route. It felt as though I would be trying to force nature and perhaps someone else would give their child better chances that I could not. You had to both want it so badly that you would go through everything to get there. I thought that I would have made a good parent, others told me that I would. I loved children and in the early adult years was everybody’s babysitter, a nanny and honorary Auntie to so many. There were a few occasions when I thought that I might be pregnant again. Periods were late, just by a few weeks which never normally happened, but then Mother Nature would play her cruel trick once again and I would be left quietly devastated.

I settled into the life we had and the pain of a condition along with multiple surgeries over the years and prayed a lot. That if it were right we would be blessed with a child and if not, then the pain would go away. Over time I asked about more permanent solutions since my symptoms were clearly cyclical and getting worse I was finally given the green light on a hysterectomy having fought to have one for several years. I was told that they didn’t want to do it as I was too young and had no children. They said it would be irreversible and force a medical menopause. I argued that having been told I would never bear children at 17 what were they waiting for, why prolong it any longer? I could have had a life and been pain free before now! Finally someone listened to me. A week before my 35th birthday I was scheduled for a hysterectomy and I thought that my Endo problems would be over. In my mind it really was a case of New Year New Me! The one thing that wasn’t explained was that even that could not heal the condition as it is incurable. Yes it could slow it down ease some of the symptoms but it could come back, as I would find out.

I was in surgery for several hours, they cut me about a lot and as my partner paced the hospital in the snow smoking and worrying about me, as they stopped the haemorrhaging he was glad that I had made it through. As I healed I felt that my life was truly about to begin. Full of hope, ambition and excitement for what might happen next. A healthy and happy future together pain free.

For a few years, I championed the work of the surgeon. I happily recommend him now to other ladies who need to see a specialist for the condition since he is the only Dr I have met who understands it. He had after all enabled my life to start given us me back. There was an Endometriosis support group at the hospital and I used to go there after the operation. I even did a talk and told my story there once. My partner was so proud of me. Prior to the surgery I had often had thoughts that I shouldn’t be here anymore, Endometriosis can do that to a girl,  it was usually when my hormones fluctuated uncontrollably. But then I thought that some people might miss me and they shouldn’t have to. My hormones had a lot to answer for!  It was a huge step to be able to speak there in public at that group and when people came up to me and told me that I inspired them it made the stage fright worthwhile.

I threw myself into my work, getting on with our lives together and for some time felt no pain. I went on HRT within 24 hours of the operation and have remained on this since. Opting for patches rather than tablets due to suffering with irritable bowel for all these years I did not wish to lose the benefit of the HRT. About 2 years went by I think before I started to get those familiar dragging pains back again and I remember asking how it were possible that you could get the same pain when you no longer had the equipment. No-one seemed to be able to give me a straight answer and by then I had been signed off as healthy by the gynaecologist. I also received a letter saying that I was no longer required for smear test screening since I no longer had my ovaries. (Yes they actually wrote that! ) I began to research how on earth I could be getting Endo pain again when I’d had a hysterectomy. In my naïveté I had assumed that that was it and I would be cured. I got on the hysterectomy association website again and checked the forums and to my horror my fears were confirmed. There is no cure! 

In all the appointments after a diagnosis which on average takes seven years, I did not ask. I merely accepted it when I was told by the consultant that “There is no sign of Endometriosis” after the operation at the time that sentence had me doubting my sanity more than I ever had before. I asked my partner had I imagined it all these years and gone through all that uneccessarily? Had the other Doctors got it wrong then? No, he reassured me that it simply meant that he had removed all traces that he could find at the time. So after that I was discharged from his clinic.

The Endo pain comes and goes, in times of stress it flares up along with the irritable bowel and my stomach swells making me look as though I’m pregnant, sometimes adding several dress sizes to my body overnight. It causes pain in the strangest of places and I have no idea whether it requires further surgery. After all, I wonder what else could they take away? Sometimes it is a chronic pain which doubles me up making me shake. Leaving me wanting me to hide away all I want to do is curl up and sleep for days. Other times I get by with rest and painkillers and there are times it stops me doing things that I would love to do. It has had a devastating effect on my sex life. I am not alone, so many other Endometriosis sufferers go through this. Far from giving me the freedom to enjoy sex more which I had hoped for, the hysterectomy was like flicking a switch on my libido plunging it into darkness  where I often can’t find the switch to turn it back on again. It’s devastating when two people who have always found each other the best thing since sliced bread with great chemistry are suddenly just not being turned on so much. We both felt cheated by this since no-one had forewarned either of us. Over the years since then our relationship has shifted and Thankfully we are strong enough to handle the ups and downs and can still light each other’s fires even though it may not be as often as before.

He told me years ago that if we did not have children of our own then we would raise puppies. Our second one since then has joined our family taking the place of the first one who left a gaping hole when we lost him earlier this year. For me that loss was like the miscarriage of my youth all over again. Having your baby suddenly gone can tear you apart as well as open up old scars. It took a while but we needed that unconditional love back in our lives so we lavish so much love upon the new puppy and he is happy here.

Whatever your circumstances. There are some wonderful support groups, on Facebook and other forums now. When I first went through this before my illness was diagnosed I was reliant upon libraries and a disinterested GP who was happy to palm me off, as is so often the case. I knew absolutely no-one else who had these symptoms so felt that there was no one to ask. Most of all you need to know that you are not alone. As a statistic one in 10 women suffer with Endometriosis but it is natural to doubt your own mind when your body is doing unexplained things to you. If you have chronic abdominal pain, or just that something is out of the ordinary with your body and it worries you then please ask your GP. Do your research via these forums and get a second or even third opinion. The social network is a good place to start but you do need to get it checked out by a professional.

If you are UK based and diagnosed or think you may be living with this condition then please take a look at the attached links Endometriosis.Org – Facts

Should you wish to connect with others in the UK please go to Endometriosis U.K. But other groups and locations are available worldwide.  Endometriosis Sisters Support Group – Facebook is  a place where you will find so many people who will inspire, encourage and advise you, based on their own experiences of dealing with this condition. You will also find lots of research articles via Bloomin Uterus Blog

You do not have to face this alone.

 

3 Quotes in 3 Days – Day 3

Ok so I may not entirely have got my head around the rules of this challenge. I am sure that http://www.trulyunplugged.com will find it in her heart to forgive me. 

Yesterday I posted two days at the same time. But in my mind since I wrote the first on Friday and forgot to post it then, it must count as a separate day!  It’s been a very fluffy week, by that I mean the head being full of fluff. My Health has not been great and lots going on followed by Excitement building for today when something wonderful is going to happen. (More about that in a post later!) I’ve been more than a little preoccupied whilst trying to settle back in down South.


I’m afraid I don’t know the author of this fabulous quote for today.  It came from “Heart  Centered Rebalancing” on Facebook and I felt the need to share. I have mentioned in the past that my own instincts have been ignored by me too many times to my detriment. It is a slow process to trust your own instincts. This is especially difficult when hounded by self doubt, but I am learning finally. I have been following them and they have been leading me onward, guiding me where I used to get so lost. If they can continue to shout louder than my stubbornness in my subconscious then I will stay on the right track. 

Wish me luck with that! 

So, that’s it for this challenge. Being a bit of a rebel at heart. Rather than nominate specific bloggers. I am putting this one out there for anyone reading this to join in. I’ve enjoyed the challenge you might too. I may even go at it again later…