Patterns & Textures

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How Bizarre! I don’t know what it was that went Pop! Inside my head last night leaving me feeling rather sick and dizzy and a little spaced out for most of the night, but to say that I feel a little bit odd today would be an understatement. I have not taken anything which would alter the mind or vision I hasten to add, but it left me feeling decidedly strange. I am hopeful that whatever it was that has given me a sore ear again today is not a return to the past three months of whatever caused havoc but a conclusion to it and I will finally feel so much better, instead of very nearly almost.

On the plus side though, I am rather transfixed by patterns and textures today and have spent a merry hour or so photographing all sorts of things around the home, so not much is getting done here today and You, you Lucky People get to see what I‘ve been up to….

Hopefully it will not be too boring for your though and it’s all in the name of creativity. It was another blogger, Austin Kleon who started me on this. This morning, I recalled looking at something he had done on one of his blogs. Like some of the greats which catch you totally unawares, it has sat there in the back of my mind since then, it challenged me to look at what constitutes art in a different way. He also seems to be a fan of recycling in what he does and this had me opening every envelope I could find with a printed interior, rather than throw them in the recycling, I thought I might do something with them myself, such as cover an old notebook with them, or on a grey day, (like today) begin to colour the endless patterns. Pattern can jump out from the oddest places once you start to look for it.
Then checking myself for thinking I must think I have too much time on my hands, I settled for photographing them instead.

No doubt I will add to the collection over time, before my new notebook cover takes shape.
I think I am a long way off from the leather bound one, which I have intended to make but streets ahead of my desperate reporters notebooks.

Sheet Music and Musical Events.

I remember that I am sitting in my Grandmother’s house, at the time when I was learning to play the recorder. I had to learn how to read music. It was the only way I would progress and be able to play in the school orchestra. As a small child, I did not have the lungpower for a proper wind instrument. I had only a small voice and couldn’t quite muster enough puff to play for any length of time. However, my Grandmother persisted with me. She would always help you if you were willing to be taught, laughing as I write this as the reality dawns that I am exactly the same in that respect. You shouldn’t waste your time on people with no wish to learn. If only I had remembered that in the training sessions of my later employ, when others who did not wish to partake, sat looking blankly on, saying that they just, didn’t “get it.”

I remember her running through the notes with me, singing which were which and explaining each one of them to me and where they would be within the piece of music.
Gone with the mists of time I now do not recall any of the knowledge behind it, I remember that I like the treble clef with it’s artistic swirl at the beginning of a piece. Whether it will return or be dragged from my mind kicking and screaming remains to be seen. I had decided that I wanted to learn a musical instrument. The recorder was a cheap instrument for my parents to buy, they couldn’t afford a trumpet, my hands were so small that I probably in truth couldn’t hold one. I could barely reach the bottom hole on the recorder. I had a Hohner recorder, it was black with a cream line around each section where it screwed together and you could dismantle it for cleaning, along with a plastic cleaner like a large needle and a piece of fabric threaded through the top. You pulled it through the instrument to remove saliva deposits so that it didn’t sound like you were just blowing bubbles. I also had a bamboo recorder, which had been acquired from goodness knows where, but my mother deemed unhygienic and spirited away. I think that one had come from one of the jumble sales. My Grandmother For the classes at school, I was required to learn to read music, so that we could play whatever was required for assembly or the forthcoming concerts.

Although I have a love of music, playing an instrument did not come easily to me, around the same time, my parents decided to play and sing together in a band. My father on guitar and them both vocalising, my mother also had a tambourine to accompany them. They enjoyed themselves and would take us along to visit other churches, parties at houses of the people in the church and various places, the songs were religious and they were part of the local Baptist church congregation. They would take my brother and I along. I played a tambourine to join in but I think my brother just sat it out, he wasn‘t one for singing or musical instruments. It was at this time, that I recall they played at an asylum, it happened more than once, but I remember feeling distinctly uncomfortable being there. There were patients milling around and a few “orderlies” standing around listening to them in a room. It seemed to go on forever and as small children do from time to time, I needed to go to the bathroom. They hadn’t finished their song, but I couldn’t wait, so telling my Mother where I was going, they continued to sing and play. I remember walking along the corridor to the toilet, I saw a man was coming the other way. I looked at my feet, attempting not to make eye contact and attempted to walk on past, he suddenly veered towards me and I looked up, at that point the man shrieked at me and clasped his hands to his head, then went off to bang his head against the wall. I ran away as he laughed manically. There was a room with people in further down , a lady screamed out, someone told her to calm down and not to fuss, what on earth were they doing to her in there?

It was quite some distance from the room where my parents were, to the visitors toilets. I don’t think that the organisers had put much thought into it putting us in a lounge away from the usual visitor area. I didn’t like the place, it made me so terribly sad to be there. In this huge and beautiful old building, on a bright sunny day with a wonderful wide expanse of garden outside, where no-one was allowed to play and where supervised people shuffled along the pathways, unable to walk on the grass. A place where despite the singing and praising the Lord, all I could hear was screams and cries. I went to the bathroom and despite my fear of being locked into places, I locked that door. I did not want anyone to come and get me, besides I had to pull together enough courage to make it back along the corridors.

I ran back to the room, clattering along the corridors, I saw a lady curled up in a corner, two nurses were trying to get her back into her room, she clearly did not want to go, she wrestled with them. They asked me what I was doing in that part of the hospital on my own, I shouldn’t be there. I explained that I was going to the toilet. Keep going they urged me and don’t stop to talk. I flew along the corridors and crashed back into the room, the parents were still playing, surrounded by inmates who were now singing along in their own way, rocking back and forth, emitting strange noises. I’m not sure, but think that it did them some good,. I was quiet on the way home. I asked later told my parents that I didn‘t want to have to go back there. I was scared of the people there, they were in the process of telling me that I shouldn‘t worry they were only people who were sick, that we were trying to help. But I was adamant that I did not want to return and told them what had happened when I needed to go to the toilet. My mother berated me for not taking my (older) brother with me when I went. I said, he wouldn’t be allowed in the girls toilet. So after that they agreed that it probably wasn’t a good idea for me to go again. On going to school, the next day I was asked in class what we did at the weekend. I told the teacher, she did not believe that I could possibly have been there, why would a child go to such a place. Surely I had made it up, some of the children decided to be cruel, chanting that I had been to the “nut house” and that my parents must have taken me there because I needed to see a Doctor, and I should have been left there. My sleep was disturbed for some time afterwards, I regularly had nightmares about the place.

I think that after that, my love of learning music waned. I do not remember continuing and being a part of the Orchestra for the school concert. Later I looked at learning the piano, but my parents would not entertain it. It’s a shame since in my earlier years, we actually had a piano. I did teach myself “Do Re Mi” from the Sound of Music on the piano which was held in a room at a church we later attended, it was a beautiful grand piano which had rolls of music which could play fantastic pieces, if you wound it up, I would spend hours in there just listening to it. Someone had donated it to them and it was kept in a room there. I always snuck in there to play it whenever I had the chance. Most people learned chopsticks, I was different. Looking at a page of music, I now only see notes and not a way to play them, maybe I have blocked it all out

Years later, my friend was stationed at the same hospital for part of her nurse training, I stayed well away from the building but did visit her in the nurses quarters on a few occasions.

May is Mental Health Awareness Month. I saw on Twitter yesterday, I think that is why this particular memory came back to me. At eight years old I decided that I never wanted to be put in one of “those places“, who knows what happened there, but the people were so very broken, they would never be the same again. I did not know, nor was it pointed out to me that sometimes people actually recovered from mental illness. No-one thought to explain what mental illness was or that it affects people in varying degrees and takes on many different forms. For many years, I had one view of it, I thought that it was where people “ended up” since there was often talk of suicides there and I certainly did not want to go there or join that club. To this day, I struggle with seeing people rocking, it takes me right back to that time. I do want to try and help, to hold them close, take away their pain and stop them from doing it. Seeing that person rocking years ago, throwing their body into the wall, faster and faster has stayed with me. I did not understand the relief that could possibly be gained from literally banging your head against the wall, later I figured it was as they tried to escape from themselves and the pain that they were in. I have always tried to avoid doing the headbanging, it tends to be a more subliminal thing with me. Years ago, I watched the film One flew over the Cuckoo’s Nest, with Jack Nicholson. Although I could appreciate the acting in it was brilliant, I found it one of the most disturbing films that I have ever seen, it brought back so many of the images from those visits to the hospital which had lain buried for years. There is a stigma, no one wants to be thought of as unstable, deranged or messed up. We all have our moments, some last longer than others. Some feel as though they are insurmountable. Some get help and iron out the crumpled bits, living to fight another day. Some fight their own battles for years, denying they even exist then life slams your head into that wall and you get a wake up call.

Welcome Back

I have missed your kisses.
The taste of you as you kiss me,
The pressure of your mouth upon mine.
Exploring me as you look into my eyes.
Reaching for me in that all enveloping make you feel loved and safe, nothing else matters moment.
I have missed the closeness, of your head resting against mine, being hand in hand and the curl of your hair, soft under my fingers.
Sickness had placed a distance between us, a cruel infection that neither had wanted the other to share, but inadvertently done so, making us sad, erratic and ill. Although a temporary setback we have been together all along, but that something has been missing, the closeness and we were somehow detached.

You are still here, I am still here, Let‘s celebrate.
Yesterday I stole my first kiss from you in ages and whispered “Welcome Back”
Although I had not even meant to do so it came so naturally, It made us both smile. I ran my fingers through your hair and sat cuddled up close to you, hand in hand and happy. We are Home, we are together.

Deliriously Deluded Ramblings Vol 2

Jolted awake from her sleep, by the bitter taste rising in her throat. She had no idea of it’s sudden cause. The taste acrid, it burned inside her throat. She was certain that she saw something in the darkness, laying on the edge of the mattress. It looked like a furry caterpillar, or some strange sort of plant life and she watched as it moved away and disappeared. Had she dreamt it, she searched on the floor, but it had gone. Her breath was awful, had she swallowed something in the night, an insect perhaps? It felt as though something had died in her mouth and she felt the soreness within her throat. Had the infection from her ears travelled there? The thunderclap in her ears just a week before had left her dizzy and disorientated as though her head was under water, she was not able to hear properly.

Looking at the clock she was wide awake. Three hours had passed since she had hit the sheets, exhausted and craving sleep. Was it a reaction to the stress? Acidic plasma filled her mouth, she hauled herself to the bathroom resisting the urge to be sick. Minutes later her tongue sore from scrubbing with the toothbrush as she tried in vain to rid her mouth of the bitterness she inspected her mouth for signs, the now familiar white lumps had appeared again at the back of the throat. she hoped that she would not suffer with another outbreak of ulcers to join them, but feared that it may already be too late. In recent years, they had become her body’s first deep distress signal. Her mouth swollen and sore, her lips feeling as they were on fire…
The past month has been rather dark at times. Don’t get me wrong, it is not all doom and gloom, I have had moments of Happiness thrown into the mix and clarity at times, but I have been suffering with a physical illness which really took a hold of me, causing infections, delirium and fever to ravage the body and manifest in so many ways. It has rather taken me out the way of my path to Happiness, which I had decided to journey onto and up until then I had felt that I was doing quite well.

It always catches me out on how illness can affect the brain as well as the body. I should be prepared for it by now, after years of illness with Endometriosis caused havoc upon my brain and eroded the person that I was going to be, there was so much that needed to heal. It is logical that when the mind or body is under stress, then it has to come out somewhere. But I often feel that they are seemingly unconnected it can cause your worst feelings to come up to the surface, fear, loathing, depression etc and memories you had buried from the past all racing to the fore.

Once the illness is gone, you start to rebuild what you know and try and return to your normal self. Sometimes it is easy, other times difficult, at the moment, the feeling of what I have been going through for almost a month now is still fresh and raw in my mind and I am not yet over it. I guess I am trying to rush the process, having felt that I should be much better by now, my creative juices have dried several times during this, although there have been spurts of writing, it has not exactly been the flow which I had experienced prior.

It changes you though, you feel things are never quite the same again, when you have experienced the ravages of the fever demons tormenting your mind and body and starving you of sleep when you are wracked with pain. Whatever the hell this was, I certainly don’t want it back. I will be glad when it is over and wave it goodbye. It’s a proven fact that people are getting more sick, it can‘t always be avoided I know, but it knocks you for six when it hits. I also make a mental note to stay well away from anyone who is unwell and boost my natural vitamin intake wherever possible.

Deliriously Deluded Ramblings. Vol 1

048Well, that might actually be a little harsh, but there are times such as now when I feel that anyone looking in on my world at this split second, might think I was. I have been feverish for a couple of days, thanks to the bugs which were passed to my beloved and having given him a week of care, antibiotics and myself a large pat on the back for being able to avoid it, as they say, pride comes before a fall. So stumble into bug filled oblivion I did, with a mighty crash over the Easter weekend. Thank fully, I had the foresight to go and do some shopping to tide us over for a few days, when I had started to feel a bit “under par”

I coped with all of the usual things and then yesterday it hit me, like the proverbial tonne of bricks. So here I am at 3am sitting with a rather fetching hat which covers my extremely painful ears, a scarf around me covering my sore throat, fluffy slippers (de rigueur) and my pyjamas, due to the temperature I am currently sporting, I have also joined him in a course of antibiotics, in the hope that if I catch it now, it will not go to my chest as well as the places it is already wreaking havoc.
All in all it’s not my best look, but he told me he loved me and that I am beautiful before he left me to sleep, but he is delirious still, I’m sure of it. I tried to sleep, but have not been able to do so, so got up again with my painkillers.

Like a short circuit. I am hauled from my deep sleep and dreams, it is as though I have walked for miles over hot coals.
As my feet touch the cold floor, there is a searing, like steak on a barbeque, the heat travels up my legs in an unexplained painful sensation.
It has happened so often, as though 3000 volts have just been switched on and I am jolted again into life. A standing start from which to let the dog out in the middle of the night. As I return to the warmth of the bed, my feet throb and the blood pulsates through my veins, surging like a faulty power supply. Or perhaps just this power surge. Releasing heat like a powerful firework, a bursting rocket upon the sky, as the sparkles fall to the floor, intense and strangely moving as they land.

The electricity dissipates, it ebbs away over time leaving restless legs again throughout the night. I take a sip of water and raise the glass to my forehead, feeling it’s coolness, and resisting the urge to pour the whole glass over my head, knowing that water and electricity don’t mix and risking it once again.

Unemployment or Sickness?

At the moment the time is mine,
To go each fortnight, wait and sign.
Your name is called from where you sit,
As needs must on benefit.

Your job search progress is dissected,
To see if income will be affected.
Since you are here, you must be fine.
Now in the unemployment line.
But actually you’re in the thick,
Since they decided you’re not sick.
Although you live quiet as a mouse,
Quite often unable to leave the house.

They ask if your circumstances have changed
Yes, you think you’ve become deranged!
by removing all of the help you could get,
guidelines and criteria, that until now you’d met.
You’re not yourself, your nerves are shot.
And into such a state you’ve got.
Out of place, here you’ve been sent
When around you, angry ones will vent.
Your safety concern, cause for alarm.
They’ve certainly lost all their charm!
Some people there just couldn’t care less,
That you have lost your sense of purpose.
Don’t look your best it’s frowned upon,
Like something special, your time is gone!

So as you continue to persevere,
Make sure you’ve no need to come here.
You’ve hit rock bottom, with no funds to pay
Attending here you continue to pray.
That some one will offer, a job they’ll give
To enable you once again to live.
A sense of satisfaction they’ll say,
When you go to work to start your day.
Just hope that that now once you’ve met,
Can’t see through what you try to forget.

You cope with demands come what may,
During the next part of your life you play.
So get back to work, ready or not,
Time looking through the next lot,
Of jobs you would never choose to do
If what had been coming, then you knew.
Don’t fit in.  Previously were decadent,
Now on for better things you’re meant.
They had you cheap, by then you’d started,
Took months before with them, you parted.
They say you learn from your mistake,
But experience is something you take
With you everywhere that you go,
When work is there, but wages are low.

Venturing Out

Stepping out slowly, almost tentative,
Your emotions heightened, sensitive.
You hear birdsong and start to listen,
A sudden emotion your eyes glisten.
Tears will flow upon your cheek,
Havoc on your emotions wreak.

Finally decided to leave your home,
There’s so many things as you roam.
An onslaught arriving on your senses,
Too much to handle, no defences.
People move around too quick,
A sudden encounter, you may feel sick.
But you have to try, come what may
To venture out, almost every day.

Just a small walk upon the road,
Need the release, such a heavy load.
A group of children always hustle,
Mother’s walking along will bustle.
Sights and sounds of the outside,
The instinct may be to run and hide.
But out there to the world you must return,
The change is that now you are willing to learn.

A small part of you, that you’re willing to give,
As you wander around where you live.
Exploring again, your steps you retrace,
Re-learning about this wonderful place.
Although you feel that your progress is slow,
Once out of the house again you know.
It’s been so long that you’ve been away,
One small step means you’ve found your way.
Don’t see you’re taking it too fast,
This recovery will have to last.

Fighting the urge of wanting to go.
No you must return to smiles and “Hello”
Not back to the safety of your four walls
Wake Up! This is your clarion call.
Life begins the moment you start,
So let it back in and open your heart.
To all that it has to offer,
When you feel that you’re getting better.

Endometriosis – A few things to know.

As we are still in Endometriosis Awareness Month, I thought I would pass on a little experience regarding how this condition or disease might affect you, If you suspect or have been told that you have Endometriosis, here are some of the warning signs I’ve noticed and been made aware of, I thought I should share them with you in case no-one else has.
Firstly, Endometriosis affects 1 in 10 women, so you are never alone.

That if you have very heavy and painful periods with abdominal pain during the rest of the month you may have this condition.

It is not currently a recognised disability.

It is an invisible illness, a lot of the time people will accuse you of faking.

People will not understand, unless they have ever been affected by it either themselves or with a loved one.

It can affect your fertility. But, some are lucky to be able to bear children.

It can be a hereditary condition, but it can also skip generations.

You will often feel as though your medical team are not listening, some are just blissfully unaware.

Your diet will often be affected by this condition try eliminating foods and re-introduction to see what suits you and what does not.

You may develop IBS, this could be down to diet, medications or even just a progression of the disease.

Your weight and/or size may fluctuate. Be prepared to wear larger, more comfortable clothes at times when you need to.

Sometimes you will bloat with wind and it is excruciating. – Peppermint is your friend!
Having a child will not cure it, neither will a full or partial Hysterectomy. There is actually no cure.

You will be prepared to try almost anything to help your symptoms.

Until you are diagnosed, you may at times suspect your sanity.

It can take 7 years to diagnose Endometriosis, but sometimes even longer, it took 15 for me.
You will need people around you to help you, when your illness is bad. Accept their help.

Educate your friends, family and employer to this condition. Although it might affect your life to different degrees if they are aware, then you have a chance that they could be more understanding.

If your GP or Gynaecologist refuses to assist with diagnosis, then get that second, or third opinion. Referral to a specialist for this condition is key. General Gynaecologists often do not know about Endometriosis.

It affects people in different ways, but it is a debilitating condition, so if you have to take to your bed, just do it. Make yourself warm and comfortable.

Your symptoms are aggravated by stress. Try to find a quiet place to be calm and rest. – I know, this is often far easier said than done.

Although it is often related to your menstruation. Adhesions can attach themselves to other organs, this can cause you pain and other health issues.

After a Hysterectomy there may be no sign of the disease and you could be pain free. But your pain may also return and you may suffer previous symptoms again.

Endometriosis can also attach itself to the bladder or bowel.

You will know your body and it’s patterns, If any of your symptoms change or worsen, don’t be afraid to call your Doctor.

Try and raise awareness of this condition, there are many women out there who have no idea that what they are going through, is not a normal sign of growing up and are just trying to cope.

There are many support groups, Join one! They are filled with people just like you who are fighting the same battle as well as their own. You will gain, advice, make friends, gather information about the disease and how to fight it.